Hi, first time posting.
I was diagnosed with a well differentiated NET in my ascending colon 23/4/25 after a colonoscopy and CT scan. Had 2 MRI scans with contrast as liver and pelvis areas of concern. Been told today there are tumours in my liver. Waiting on pelvis MRI being discussed at gynaecology MDT on Friday then colorectal MDT next Tuesday to discuss all results and treatment. I’ve been told
I’ve been told by the Macmillan Clinics l Nurse that I will need chemo for the NET and liver tumours, then possibly surgery to remove the liver tumours if shrunk.
I’ve had no symptoms and only found out as had a bleed mid Feb when going to the toilet and GP got me to do a GFit which came back as 25 when should be below 9. Hence the follow up investigation.
Feel like my world is collapsing.
Hi WendyC and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
While you're waiting for replies, it would be great if you could put something about your diagnosis and proposed treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
