Hello I was diagnosed last December with Neuroendocrine cancer. The main tumour is in my small bowel, Stage 2, with secondary tumours in the liver. I also have carcinoid syndrome as a side effect. I have a lanreotide injection every 28 days and have...
Hello folks, having been diagnosed with a Neuroendocrine tumour, I am seeking a fellow sufferer who has endured the Whipple procedure. I am advised this is what I have to look forward to so would be pleased to hear from anyone who has had this operat...
Hello all. I am new here and somewhat awkward as I was once a cancer patient and now my precious wife of 38 blessed years has NEC of terminal ileum, mesenteric lymph nodes, and liver mets. She had surgery December 17 to remove part of the affected GI...
Hi, first time posting. I was diagnosed with a well differentiated NET in my ascending colon 23/4/25 after a colonoscopy and CT scan. Had 2 MRI scans with contrast as liver and pelvis areas of concern. Been told today there are tumours in my liver....
I have small bowel with many small liver tumours. I’m on sandostatin injections every 4 weeks.
Hi my fellow NETs patients, I’m hoping someone can help. I was diagnosed with small bowel NETs 15 ( 2010)years ago had small bowel resection was discharged after 5 years (2015) . 5 (2020) years later I didn’t feel well and after numerous tests diagnosed...
Hello everyone, I came on the group to find a little more information and to try to help me process what I've been told. Yesterday, after my daughter had her appendix out 2 weeks ago, I was told they found NET. They said they are pretty sure that it would...
Hi everyone I am an 8 year Net survivor having had partial then full Pancreatectomy. Good days mostly but some tough ones too but would love to connect and help others as well as learn from others experience.
Hi al. I had emergancy surgury to remove a tumor which had ruptured on my large intestine. I had no symptoms before this - went to urgent care expecting pain killers - instead got open surgery! The biopsi has now been done and diagnosed with a Net that...
