As it’s a rare cancer it’s very hard to find support. they say it’s incurable but treatable, I’m feeling very lost and low, iM only 52 strong and fairly fit. I had been back and forth to the Dr 5 months and no referral I clearly had signs of bowel cancer...
Hi , i was diagnosed with this in March 2025 originally i went to the Dr’s for being out of breath, flushing was so bad my nose & skin was a deep purple colour very embarrassing. Was tired all the time no energy really bad pains in stomach & back no appetite...
I have incurable Neuroendocrine Cancer which has progressed a lot in recent years. My first major surgery was when I was 13 in 1981 so I've never known any life without treatment, scans, hospitals or worry and depression. I have lived far longer than...
Hi, I'm new here I'm 43 years old and have recently been diagnosed with stage 4 gallbladder nec, they said its aggressive and have given me a prognosis of 12 to 18 months to live. I am being treated, I am about to start my 2nd cycle of carboplatin, epotoside...
Hi new to the community and just looking to connect and share, just in the middle of my 3rd chemo round so what better time for a chat?
Hi there, I was diagnosed with NET tumours in various places in my body (liver, breast, eye, pancreas, brain & bones) liver being the worst. I recently have been made aware that I now have a stage 1 renel cell tumour 2.5cm x 3.5cm. I wasnt give 2 options...
Hi I’m new here I was diagnosed with net cancer in October last year after having a prevention ovaries removed due to a previous breast cancer in 2023 found secondary net from the biopsy physically I’m getting a lot of tiredness but now I’m experiencing...
Hi I had net tumours in the small intestines. I had a right hemi colonectomy (sorry about the spelling) to remove them. It feels like it’s taken forever to recover from the surgery and get my energy back. Since Christmas I seem to be struggling with a...
I was only diagnosed in November. They found the liver tumours first and following Pet scan the primary was found hiding in the small bowel. I honestly haven’t been honest with myself and use my humour to distract. My work know and immediate family but...
Hello, newly diagnosed with MEN1 and pancreatic neuroendocrine cancer. I’m hoping to connect and talk with people with similar experiences.
