Hi all I’ve recently been diagnosed with NETS, I had it in my left lung 2018. unfortunately I had to have my lung removed. Now it’s it’s returned AGAIN! the past four years have been such a struggle This time I’m having a different sort of treatment...
Hi everyone I’ve got Nets and I’m struggling to get holiday insurance at a reasonable price. Anyone got any suggestions please. stay strong guys. Spotter.
Hi everyone, We’ve launched our annual survey for 2024! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
Hi all, I'm Sian, 61 yrs young and diagnosed 2 weeks ago with NETS of the stomach. To say my diagnosis was a complete shock is an understatement, as it completely came out of the blue and over the phone. So if I go back to late December last year, I was...
Hello. I'm new here and this is my first post. For the last two years I've been having issues with hormones and gyne. I was hospitalised 3 times with suspected endometriosis, then adenomyosis and following that. I was told i also had ulcerative colitis...
Hi everyone, We’ve launched our annual survey for 2022! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
hi everyone,, to xut a very long story short,,, my mum had pain 4 years ago, and they couldnt find anything wrong with her after 6 weeks in hospital they took her appendix out and discharged her,,, saying that they would follow it up.. they never did...
Hello For All Members and this is the my journey for NET. My name is Umut and was diagnosed with nets in July 2021, had bowel surgery July 2021 Operation 14.07.2021 - Carcinoid tumour of small bowel (pT4 N1, G1 Ki67 <2%, R0, 8 of 20 lymph nodes involved...
Long story short had pancreatic cancer in the late 1980s full whipples procedure cured. Then in the early 1990s diagnosed with nets on the liver, so far the condition is very slow growing so am not having any treatment just annual scans,tests and visit...
Hi I am new to this site and it is my partner that has the tumour. we are hoping to travel abroad in February 2023 and we wondered if anyone could suggest a travel insurance company that isn’t mega expensive thank you
