Hi everyone, I’ve recently been diagnosed with stage 4, grade 1 Neuroendocrine cancer with 60mm primary sitting where my small bowel meets the large with multiple liver mets. No op for now and started treatment with my first Lanreotide injection yesterday...
Hi, last Friday I was diagnosed with Neuroendocrine cancer. My primary tumour (well differentiated)is 60mm in my small bowel and I have four deposits on my liver. I was told at my appointment they would not do surgery to remove my primary and that they...
Hello. My dad was diagnosed with a NEC tumour in his colon and surrounding lymph nodes in March of this year. The plan was for six rounds of chemo, but he had a terrible time with sepsis and a blockage, so he only managed a few rounds before emergency...
Hi everyone, I’ve been holding this in for a while but I feel like I’m at breaking point. I’m 45, recently diagnosed with stage 4 rectal cancer, and although I’m in active treatment (currently round 2 of chemo), I feel like I’ve been completely written...
Hi, I have been diagnosed with Poorly differentiated neuroendocrine cancer of the cervix, Grade 3 aggressive. I have had a radical hysterectomy and am now recovering. I have been having all scans to check my full body to see if there are any tumors...
Hi, my sister is 35. Was told she had a shadow on her liver which we know now to be a NET. After more tests, scans & a biopsy on her liver, it appears the primary NET is in the small intestine (duodenum). We have an appointment next week for a full...
Waiting in Elizabeth Loury ward in quiet room. Have to have 1st cycle in ward the rest will be in Chemotherapy unit. Anxious today. 1st chemotherapy cycle 5 to go. Had all my scans last week waiting on results. 6 weeks post surgery of Radical hysterectomy...
I have just been diagnosed with neuroendocrine stomach cancer last week and received i fo through the post which says that there are normally more than one tumour at the same time, is this correct and if so would it be localised to the same organ? Found...
Hello! Just got in here looking for a ray of hope for my 70yo father. He was first diagnosed with a 5cm pancreatic tail tumor in march 2023 on a regular CT scan, after having stage 1 colon cancer. In November 2023 the tumor had grown to 7.5 cm and spread...
Hello, I am new here but not new to having NETs. I have almost 30 years of pheochromocytomas and have been under annual surveillance since 1995. Episodes seem to occur around every 10 years with my most recent surgical removal in 2015. My surgeon took...
