Hi i had surgery in September to remove a Typical Neuroendocrine Carcinoid Tumour from my Right Lung. I was told surgery was successful and the Tumour was removed. Clear margins and no lymph gland involvement. My nerve pain is still very sore from...
Good morning this is going to be like something out of a novel but I’m absolutely petrified at the moment but here goes. around 2 and a half years ago I began experiencing excessive sweating, flushed face, nausea and an urgent need to open my bowels...
Hi, I was diagnosed with a neuroendocrine tumour in my gallbladder in December 2025. I believed I only had gallstones so it was a huge shock. I had to have numerous scans, a laparoscopy, surgery and now undergoing adjuvant chemotherapy. Cisplatin and...
Hello all Thought I'd share my story, I've condensed the time lime to make it more readable! So historically I have always been fit & healthy and no major health issues, I have just turned 56. 3 years ago (roughly) just had...
My Dad was diagnosed with stage 4 prostate cancer back in December 2025 following an MRI. He had all of his results (MRI,CT, Biopsy + PET) on 28 April 2026 and the prognosis was 5-7 years because his Gleason score is 9 and the cancer was confirmed to...
Hi all last year on my routine scans it was picked up 3 of my nodules had grew and looking suspicious. So I had biopsy on my top left one it came back carcinoid cancer. They then tried to biopsy top right unsuccessful.so it was decided to remove top right...
I’m due to have a gallium scan two days after a liver biopsy, has anyone else had these two procedures done so close to each other?
Awake and feeling sorry for myself. I feel so much has changed in the last couple of months and I’m struggling to get my head around it all. I’ve updated my profile to explain my situation so far. My worry at the moment is carcinoid syndrome. I’ve read...
Hello everyone. Just joined this group. I was diagnosed with stage 4 neuroendocrine cancer, carcinoid syndrome 6 years ago. I'm doing pretty well. But I hate the flushing. I'm currently getting monthly Sandostatin injections. My question is are there...
Hi, I'm 35 and I got told about 3 months ago I have cancer. I had been going to the doctors for around a year and a half and got told all sorts before one doctor sent me for an ultrasound. This was just over 5 months ago now. I originally got told...
