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My husband was diagnosed in august 2021 and has so far been managing his treatment quite well. Unfortunately his dose has had to be reduced due to ankle swelling and achey legs. He now seems terribly weak. It’s disheartening as everything seemed to be...
Has anyone had the new T cell treatment? I have a more aggressive myeloma that the haematologist has struggled to control. I have had VTD, PACE, ESHAP and a stem cell transplant. I only lasted a year post transplant before relapsing. I have started my...
I am a 52 year old woman diagnosed with MM 2 years ago. I was talking to a lovely lady in the clinic today who suggested I join this group.
Well how did this happen that's the question I keep asking myself. I had my diagnosis yesterday after just 5 weeks Never did I think I would be starting 2022 by hitting chemo and fighting MM 2022 I'm meant to be getting married in April, I should...
Ive been having back pain very bad back pain, nose bleeds, fatigue and right out of the blue my gp is screening me for myeloma. I had never heard of it before so its taken a few days to get my head around the possibility that I may have this form of cancer...
My husband as just started his thirdline treatment for relapsed myeloma, im worried we may be getting close to the end as it has come back aggressively. Is anyone else on thirdline treatment?
Hi - and hello from France where I'm now starting my third week of treatment. I'm grateful to find this group where I can look through and see other peoples worries and challenges, and the support they get in the responses. I don't know if it's the...
I was diagnosed with Myeloma earlier this year but so far not requiring medication or treatment. Just wondering whether anyone has experienced nose bleeds with this diagnosis?
Hi I am still awaiting confirmation of myeloma but from my doctors tone I think it’s inevitable . Was picked up from a blood test for stomach problems . To see I’m scared is an understatement as I went through breast cancer a few years ago . The tiredness...
With the rapid soaring of the omecron variant I am feeling a need to reduce my exposure. I wonder whether I should be self isolating to protect myself as my myeloma consultant suggests my protection even with 3 vaccinations is still not as good as most...
