Hot and Cold

Hi there, I had pins and needles like tingling in my arms and fingers when I first started my treatment, I do have hot heels and numbness in my legs which I am told is neuropathy and should improve. I hope your sleep improves it is awful as it makes you so tired throughout the day, let me know xx

Hi Bac 

just realised I didn’t reply from your msg hope you can see my response below!! X

Hi Notgivingup

Its all early days, I started Chemo on 14 November and taking these cocktails of drugs is an invasion of your system, the biggest is the fatigue and breathlessness.

the Thalidomide caused caused other complication, but on Friday l see the consultant about by bloods to be done on Wednesday. Its the start of a very long road.  

Thanks for your reply

Hi Bec, I am dropping in past to say welcome to this corner of the Community although I am sorry to see you joining us and hear about the journey your journey so far (I have also seen your first post in the Cancer Chat Group)

I am Mike and I help out around our various Blood Cancer groups. I don’t have Myeloma but I was diagnosed way back in 1999 with a rare, incurable but treatable type of Non Hodgkin’s Lymphoma (Stage 4) so although my Blood Cancer ‘type’ is different I do appreciate the challenges of this journey rather well but not the specifics of your treatments.

I can safely say that based on my many years on and off treatment my bodies internal thermometer was often knocked out if sync so being hot in one place and war in another was at times part of life.

Peripheral Neuropathy can ‘play’ with your body in many ways but on the whole this will pass once you are through treatment.

It’s a challenging time for you so you may want to use the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provide cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.

We also have our Ask an Expert section but do allow a few working days for a reply.

For good information do check out Myeloma UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 0800 980 3332

Always around to help more or just to chat.

Hello again! I have finished my 4 cycles of treatment and I am so glad to be rid of the thalidomide!! Please let me know how you get on with your appointment with your consultant xxx