Confused about numbers

Hi Jensman and a warm welcome to this corner of the Community although I am sorry to see you joining us and hear about the wife’s journey.

I am Mike and I help out around our various Blood Cancer groups. I don’t have Myeloma but I was diagnosed way back in 1999 with a rare, incurable but treatable type of Non Hodgkin’s Lymphoma (Stage 4) so although my Blood Cancer ‘type’ is different I do appreciate the challenges of this journey rather well but not the specifics of her condition.

Let's look for some of the group members to pick up on your post. There actually have been a few new members join recently so why not click on the main ‘Myeloma Group’ title and this will bring up all the group posts.

Have a look at them and as always you can hit reply to any post and see if the member is still using the community.

It’s a challenging time for you so you may want to use the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provide cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. We also have our Ask an Expert section but do allow a few working days for a reply.

For good information do check out Myeloma UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 0800 980 3332

Always around to help more or just to chat.

1. Hi Jensman,I had mguss for 3 years with paraproteins at around 16.Last year they started to increase to mid 20's with bloods being done monthly. Treatment started in Febuary with paraproteins in 50's and mguss confirmed as multiple myeloma. Hope this is helpful. John

Thank you so much for the advice. It’s all a bit of a minefield at the moment, but I will look into the information you sent. Thank you.

Thank you for the information. I’m learning so much about this but it’s so difficult to try and stay calm. I get worried all the time when Jen says she feels unwell as it probably makes me overthink her condition.

Try not to overthink the situation it’s not a good think to do instead look on the myeloma uk website it’s been brilliant for me.Speak to the haematologist and find out if there is a haematologist nurse you can access. Don’t use google. Always around if you need a chat. Take care

Thank you. Overthinking is probably my biggest issue. At the moment every time Jen (the Mrs) tells me she doesn’t feel well or she’s tired or she aches alarm bells ring and my first thought is her myeloma. I’m sure in time I will learn not to overthink. And no, I very rarely use Google. I am going to check out the myeloma uk website though.