EXERCISE

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Good morning everyone 

I lost height due to the MM and after diagnosis was referred to a back specialist, who I saw as well as starting the Chemotherapy. Followed by an SCT and now in Remission and on Lenalidomide.

The back specialist said no further treatment needed.

I do get very stiff though, during the day especially, when I have been sitting. I walk as much as possible.

Can anyone tell me, if you were/are in a similar situation, do you do any kind of physio. Or given any exercises recommended from the hospital.

I will obviously, ask before I start, doing anything further.

Thank you

Jayne

  • HI  again,   i have a weak hip  due to the MM,      i was feeling strong,   and  dog walking,  so i started light jogs,  buillding up the  length,     i told with  some joy of this to the consultant,  he sad STOP!   JOGGING,   GO SWIMMING,  so i did, and do,      its  not as easy at it was,  but    for  24 hours plus after i feel  great,    still walk the dog,      45 minutes or so,  and  use the NHS  step  counter,  but    yes get advice,    and   lead into it slowly,       best wishes for a continued good recovery     Kevin

  • Thank you Kevin

    We’ve got a dog, but she is almost 18, so not much walking these days, unfortunately. Just for toilet breaks.

    i’ll mention it next time I speak to the consultant and see what she recommends. 

    Good luck to you too, it does help sharing experiences.

    Jayne

  • Hi i have lost  2inch due to mm i take strong pain killers for my  back i use a walking stick i was never given exercises i try to walk as much as i can in the morning it takes me awhile to move dye to stiffness in my back and legs hope you get something sorted .

  • Thank you Kizi

    I try and walk as much as I can, it does help.

    Jayne

  • I’m in a similar situation to you I think.  I have restarted cycling Though not as far 

    I walk a lot and I started (with permission from my team) to use an outdoor gym. 
    I used to do pilates But I’m still a bit unsure about going into groups because of chance of infection.

  • Thank you Jo100

    Yes, I agree regarding the infection but you have given me some ideas and I’ll mention to my team.

  • Everyone with Myeloma is different and should seek medical advice before starting any new exercise. 
    I have not lost any height, but I do have bony destruction throughout my spine. I had a vertoplasty to L2, which was at the point of collapse. I have another whole in L4 and smaller lytic lesions in thoracic vertebrae

    I do ten minutes exercise every morning, before breakfast. 7 minutes on rebounder and 3 minutes upper body weights. I also practise Iyengar yoga regularly. It’s a life saver for me, just no forward bends. It’s very slow and concentrates on alignment. 

    I am fairly confident my back is ok with above as I am in remission. I remember becoming more cautious when I was relapsing

    Julie

  • Hello Julie

    Thank you for sharing your exercise routine with me.

    I will speak to my consultant and get her advice on what would work best for me, before trying anything new.

    It’s been mainly walking for me, which she encourages, but as it’s raining, I am stuck in now, until it stops.

    Jayne

  • Hi Maybee just read your reply about excersise and I've been looking at doing some but like you have to be very careful of my back too, ie no forward bends. I would be interested in learning about Lyengar yoga if you could point me in the right direction.  Im a 71 year old female with multiple myeloma,  two and a half years in remission following a stem cell transplant.  Thank you x

    • Hi i am the same as bunky would like  yoga exercises or something i could do multiple myloma as well back gets really sore dont think i do enough exercises