Hello from Helen67

Hi Helen69,

Welcome to the forum. Although you say that you are lonely and isolated, you have us for a start . A lot of us have myeloma: we are going through, or have gone through, treatment. You are now a member of a community.

Diagnosis and treatment are a lot to go through emotionally. I don't do friends (I never really have). As for family, close relatives were all themselves emotionally traumatised when I was diagnosed around December 2022 (Christmas that year was tough for all of us).

It was actually easier to talk with more distant relatives: less emotion, so easier to discuss tougher topics.

In terms of practical help, please ask your family and friends. I obviously don't know them, but most people will be happy to help.

You say that chemo is suspended but that you feel well. Would you like to say more?

Thank you - this really helps. I guess I needed to take that step from individual struggling to come to terms with the diagnosis to realizing there are many others in a similar situation, and I can be part of this community.

Hello Helen69

I have gone through lots of emotions since my diagnosis and treatments.

It’s helpful to have the forum, as you are connected to others who have gone through the same as you, and therefore know exactly how you are feeling.

For me, it’s always worse in a morning and I try and recognise this and take each day as it comes, slowly at first. Gradually I have started to overcome my fears and not let them take over my life. They come, but I try and not dwell on them and think about the positives.

You can refer yourself for help, via Talking Therapies, or talk to MacMillan.

Jayne

Thank you, LadyJayne.

Hi all, not posted before with any success, diagnosed with mm 34 months ago ,12 months clinical trial immune therapy and approx 18 months stem cell transplant now tested once a month.I feel very stiff and ache every morning, push myself to get going but feel very tired and cant keep awake in evening.Is it just me or is this normal, honest replies would be apprecisted , kind regards , Mal