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Just wondering if anyone had and knowledge of spinal Bony Lytic Lesions...it seems they do not repair themselves is this correct and has anyone got any first had knowledge either themselves or family members who have been down that road? Thank you...
Hi I’m on my last 6 weeks of DVTD after stem cell , my consultant has said I will need to go on maintenance drug Lenalidomide, I’m so worried about side effects, is anyone on here on this and can reassure me
It's a funny time of year isn't it? That odd bit between Christmas and new year and nobody seems to know what day it is. Right now I feel like I am in limbo. I signed up for the Radar trial and given I am 47 and a single mum, they are going the aggressive...
Hi i am 7 years after stem cell and am starting to experience quite bad bone pains but my bloods apparently are ok . Knowing that myeloma can return should I now be worried
I think I have lots to say, just don't know how to say it. I change my words for my elderly mum, my aspergic brother, my autistic daughter. I have some nurses that are so cold that have me in a room with people who need a lot more attention physically...
Hi this is akk new to me . Just got my diagnosis last week and find it so hard don't think took anything in can anyone help?
Hi All, I have had two Bone Marrow Biopsies since getting diagnosed, I am absolutely petrified of them, the last one I had about 5 or 6 weeks ago was taken as the end of a RADAR trial which had failed me. My consultant knows how I feel about them but...
Hi everyone, I’ve posted this first in the diagnosis group and then realised it should probably be here instead. I’m Emily and I’m 42 and terrified I may have Multiple Myeloma. I visited my GP in January when I first noticed I have quite frothy urine...
Having had my brother diagnosed with MM at around the age of 56 just like to know what others had to say in regards to diet and stress, is a run down immune system possibly a catalyst for this disease, anecdotally have others seen a correlation? In...
My brother in NZ has just been diagnosed with MM he starts 14 weeks of chemo soon but is also having 5 days of radiotherapy have not seem many on this forum speak of radiotherapy, guess it is not a good sign but perhaps others have also had this type...
