Hi Everyone. I was diagnosed with Myeloma in January 2020, following many years of being diagnosed with MGUS. I had five rounds on chemotherapy, followed by a stem call transplant in August 2020, where I was a hospital inpatient for around three weeks...
I was diagnosed with Multiple Mtloma October 24 after a blood test by my Gastro Consultant (Ulcerative Colitis) noticed some unusal results. Near the end of December I started Chemo and at the end of June I had a Stem Cell Transplant. Main side effect...
My first appointment with the consultant after diagnosis of Multi Myeloma is on Tuesday. Feeling very nervous as I am wondering what is ahead.
We are going through the motions ATM Every morning hurts & feels like ground hog day, like biding time for more & more & more to come, The sadness makes me feel guilty as it is my wife who is suffering with MYELOMA I'm trying so hard to do all the right...
Morning All, I am facing a start of treatment possibly December or Jan 26. I have recently had my diagnosis moved from SM to active free chain myeloma. I am still without symptoms (fit 75) but the BJ protein is shooting up in the latest tests. and the...
Hi New here so if I’m posting on the wrong forum that’s why. Diagnosed with smouldering myeloma 3 months ago, after a bone marrow biopsy and subsequent PET scan, so still very early stage. I’m being monitored every three months and because I have a...
Hi everyone , just been diagnosed, (multiple myeloma. ) It all happened so fast , I arrived at hospital with severe anemia. After 6 blood transfusions I felt myself again , I’m living in France and don’t speak French. I was carried along with little explanation...
Hi. Recently diagnosed with plasmacytoma and my bone marrow results aspirate has come back with 13% plasma cells, so needing systemic treatment along with some radiotherapy on the plasmacytoma on my shoulder that I am having at the moment. Anyone else...
I had my appointment today with the consultant, he said my blood protein level was 26 down from 29 last time but I forgot to ask him at what protein level do they consider starting treatment, I have no symptoms except for SFN but have had that for over...
What can you eat when everything taste like dust and how long will this feeling last. I had great energy it’s gone - apologies to those looking for an uplifting post. I just want some good advice. Thanks
