ive just completed harvesting of my stem cells for stem cell transplant. am feeling very tired now and low due to side effects of the growth hormone injections . this is the first leg of my journey and today i just feel terribly dejected about it all...
Hi everyone. My partner was diagnosed with plasmacytoma of the sinus area on 7th march. We were in ENTand the doctor said he had never seen this before, so we got a kind of garbled run down and then left bewildered. He was referred to Norwich team, and...
Hello all , so my dad was diagnosed with MM in January following a spinal compression in the cervical part of his spine (neck) this means he not only is having vdt treatment as of end of Jan he also has a halo brace on and can't walk or use his hands...
Well, it’s been a while since I’ve been on here and all I can say is a lot has happened. As some of you know I was diagnosed in December 2021 at the age of 34 with Myeloma. From then I was lucky enough to marry my soulmate on 25th February 2022, go...
Hi, I was diagnosed with multiple myeloma last week. I’m 45, 2 teenage kids, husband and carer for my blind mum. It’s been a complete shock. I’ve had a few bouts of pneumonia over the last few years and recently infections I just could not shake off....
Hi, sorry about the posting time, steroid night so wide awake! Diagnosed with myeloma during lockdown (eventually) started treatment 4 months ago only getting a partial response which is disappointing. I’m 54 married with 4 grown up children....
Hello I’m new to the group. I was diagnosed September 2022 with multiple myeloma. I finished treatment 1st round but the light chains coming down slowly & did rise at one point I am now on a 2nd round of treatment different approach to bring the light...
Hi, I’m new here so thought I’d say hello. I live in France and was diagnosed in November 2021, which ruined our Christmas plans to visit family in the U.K. as my treatment started pretty much immediately. I had a stem cell transplant in June last year...
Hello
Hello, This feels strange, i first found myself on here when i was caring for my dad during his battle with throat cancer, dad passed away nearly two years ago now. Being there for my dad during the hardest fight of his life was equally the most painful...
