Well, it’s been a while since I’ve been on here and all I can say is a lot has happened.
As some of you know I was diagnosed in December 2021 at the age of 34 with Myeloma.
From then I was lucky enough to marry my soulmate on 25th February 2022, go through IVF and freeze embryos, and start treatment.
I did 4 cycles of Dara-VTD which I responded to really well, and in October 2022 I went in for my stem cell transplant, I can’t say that was a fun 3 weeks but I was released from hospital feeling pretty good considering what I’d gone through.
The the dreaded day came, 3 days after I came out of hospital on the 14th November my beautiful, caring 38 year old husband with no medical conditions collapsed on our bathroom floor and died!
I did everything I could, I called 999, I was talked through CPR over the phone the paramedics were with me within minutes but even when they got him to hospital and continued to work on him nothing could be done to save him.
My recovery from SCT went out of the window, flooded by grief and guilt I planned his funeral, got the estate in order, went through probate, called the insurance, called his work, called his friends to give the devastating news.
It’s been a complete whirlwind of emotions and ups and downs.
I started consolidation treatment in January and finished that a week ago, I have an appointment with my consultant on 17th March and will have to have another bone marrow biopsy to confirm if I’m in remission or not.
Sometimes I feel like this is completely pointless now Andy has gone he was my soulmate, my team mate and best friend but I know he would want me to keep fighting and keep living
I have no idea where life is going to take me now and i just hope I can at least get some good news and get into remission
Just wanted to update on what’s been going on, and if anyone out there has any advise about grief which isn’t “things happen for a reason” or “stay positive” I’m all ears
xxx
Dear fighting MM.,
I can't pretend to know how you feel but I lost my husband and best friend after 30 years last July. And sometimes I find it hard to get up in the morning. You just need to allow your feelings grief - anger and every other emotion you are feeling to be released.When someone asks how you are tell them. If they offer to come over etc and you are up to it let them, it sometimes helps to have another person to just be in a room with you. Remember the good times and what it what that made you both laugh and be so happy.
Thank you and I am sorry to hear what you went through
as I’m sure you know some days are harder than others I just want to get this biopsy out of the way now and find out if I’m in remission xx
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