Hi,
sorry about the posting time, steroid night so wide awake! Diagnosed
with myeloma during lockdown (eventually) started treatment 4 months
ago only getting a partial response which is disappointing. I’m 54
married with 4 grown up children. Although there is so many different
treatments available I still feel the future is so uncertain, trying to keep
a brave face for family but it’s reassuring to know I’m not alone
Best wishes to you all
Hi , I'm so sorry you find yourself awake during the early hours . I have experience of this as well .The only think I can say by way of reassuring you is that when the steroids stopped for me I slipped right back into my normal sleep pattern . So hope that you find a line of treatment that works for you . Life becomes an unexpected roller coaster doesn't it ? Going from treatment to waiting for blood test results .
I started treatment beginning of September 22 and on Monday start the primer for the stem cell harvest .
Hope you find your way through this . My children are all adults now and at first I didn't involve them much in the day to day trials of Myeloma for fear of how they would be and didn't want to upset them When I did let them in they have all been so supportive wish I had done it sooner .
Wishing you all the best .
Sue
Cakie
Thank you so much for your kind words, you are so right about grown up Kids being supportive they are stronger than you think!
Wishing you all the very best for your Stem Cell harvest I hope get into the thousands and when you get your transplant I hope you have many years of remission
take care
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