hello, just wish to make contact on the Forum, as health is good, often we only reach out when in need of help, to everyone who has commented on my previous posts i thank you, I am still in Remmision, on 4 month checks and blood tests, but 3 month Zometa...
Not sure where to start but I guess I am touching base with all you MM folk. It's Friday night and I am burnt out. I recently went to a local charity to see what help I could get and the woman made it clear I haven't had any since I was diagnosed back...
Currently struggling with very heavy fatigue. Or is it? I am on 2 years since diagnosis , treatment of chemo and SCT 16 months ago. Currently on Len and anti viral. I don’t feel any different on my week off len. i am writing this after two days of 15...
Hi everyone, My wonderful father has just been diagnosed with myeloma. He is the fittest and strongest 66 year old so it's a huge shock to us all. I live 300 miles away so not going to see him until this weekend. I've had the news for about 5 days...
Had my chemo just over 4 years ago, the major problem I have is with neuropathy caused by the drugs, it is an absolute pain, literally but nothing I have used is sorting it. I have tried Gabapentin, Amitryptoline and Pregabalin. Whilst they alleviate...
Vespa here. AKA. Kevin. I heard from a wise advisor on here that most people post when they are in need of support or advice I just wish to reach out to Thehighlander to check everything is ok with you ? Kevin
I wanted ask people advise on working and managing myeloma and the side affects , l was diagnosed in dec 23 , I’ve had my stem cell transplant and now in remission and on cycle 8 on maintance treatment which consists on a transfusion every two weeks and...
Thanks for the positive responses I received from my last post regarding treatment for neuropathy. i have recently tried Duloxatine, my GP told me to persevere with it as she had good results with patients with diabetic neuropathy…. I experienced severe...
Hi, My husband has been doing well post STC. But this morning he had a meeting with his consultant because they have seen spikes in his paraproteins. The specialist nurse said this could indicate the STC has failed. He has an urgent bone marrow biopsy...
Hi Guys I was diagnosed with Plasma Cell Leukemia in January 2025.I am currently on cycle 3/4 Induction Therapy and am looking at a SCT around May. Being a 56 year old female ,prior to diagnosis I was on low dose Hormone Replacement Therapy (HRT)to help...
