Hi I’m not new but find it difficult to post I don’t know why? I have MM I have had treatment , 2 SCT & I am on maintenace drug Lenodinide. This past week I have had pain in shoulder, neck & arm pain/ache & is not getting better I struggle to find a comfortable...
Hi my myeloma is back for the 3rd time. I can't face anymore chemo. I just want to die now rather than suffer.
Hi all I have both the above I was diagnosed after a bone marrow biopsy in Kings in august 2020 any one else got the same I have the Amy in my heart and muscles which is very rare in the muscle common in the heart me good top talk with someone thats going...
This time last year my mum was ill, we then found out she had multi myeloma. She has done initial treatment a stem transplant and then was having a break. I had my mum back. The treatment and transplant was cruelling. Her levels have not reached 0 but...
To all survivors out there i'd like to wish you a healthy and happy 2025. And everyone associated with MacMillan a very big thank you.
many thanks to many who have supported me this year, with guidance, sound advice, and praise! a special thanks to The Highlander Thehighlander for supporting so many of us with his positive responses hope 2025 is kind to all of us, with our challenges...
Hi I was diagnosed with multiple myeloma and associated amyloid in November 2022 I’ve received 6 cycles of treatment and am now in complete remission being monitored by blood tests.
Hi my mum has recently been diagnosed with myeloma and she is really struggling to come to terms with everything. She has turned off and almost going into isolation mode and avoiding reality. I myself am trying to understand everything from diagnosis...
I've been absent from this forum for a while. Can't say for certain why, think I was overloaded and just fizzled out. I'm +81 SCT and itching like crazy. It was an autologous transplant, so not overly concerned about gvhd. It could be that hair growth...
Since my diagnosis in march i have had a sore right shoulder with a small lump appearing over the summer. Over the last couple of weeks the lump forming on my right clavicle has got a lot bigger, it's now very swollen and Sore, consultant saw it last...
