First appointment with the haematologist, what to expect?

JulieSG 21 days ago

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Hi there, I'm having my first appointment with the haematologist at the University College Hospital Macmillan Cancer Centre. What should I expect? I have had months' of blood tests from the GP and rheumatologist (because autoimmune issues were suspected), which show paraprotein of 23, IgA Lambda, anaemia, neutropenia and leukopenia. I have read posts here. It seems a bone marrow biopsy and PET scan are likely. Do you know how long do I wait for the appointments for those? I have waited for months because of various reasons. It would help to know some sort of timeline after seeing the haematologist.

Cakie 21 days ago

Hi JulieSG, it's Sue here .Good to meet you on this site but so sorry to hear of your difficult time. I can't help you with waiting times for tests etc as I'm in Scotland a d my treatment Centre is Aberdeen . Seeing the haematology consultant today for the first time may be a strange time for you.. An apt you may have been waiting along time for but also apprehension and anxiety about what they may tell you .

My guess is that at your visit today you will have the answers to alot of your questions and maybe feel like there is a plan forming . Are you taking someone to support you to the apt ?

I really want to wish you well today .This site is a great source of information and support as are Macmillan .

I was diagnosed with MM Aug 22 . Have had all the treatment and a Stem Cell Transplant April 23 and am now in remission . Its easy to write this now .Its been a roller coaster but i found i was stronger than I thought ! The whole team at Aberdeen are so caring and supportive .

Wishing you all the best

Sue

Cakie

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First appointment with the haematologist, what to expect?