Hi I was diagnosed with myeloma in April 2020. Underwent radiotherapy and six months of velcade and had stem cell transplant in December 2020. I have just found out I have relapsed. I have been offered two treatments prior to stc, Carfilsomib and the...
Hi, new here need some help with blood tests. Hi was diagnosed with severe osteoperosis last October out of the blue when I fractured a vertebrae in my spine just standing up at the sink. I was sent for an X-ray which showed the fracture, a huge kidney...
I finished a year post stem cell transplant in November 2021, I was told yesterday by the nurse that my myeloma has come back more aggressively, at first I felt a little dissappointed then I felt releith that I did not have to wait and worry.
I was diagnosed with Myeloma earlier this year but so far not requiring medication or treatment. Just wondering whether anyone has experienced nose bleeds with this diagnosis?
Hi all,just been offered stemcell transplant and after reading what's involved, not to sure if to go ahead all seems abit scary for the possibility of no prolonged life.if there anyone else been through this treatment it would be good too hear from you...
I have just returned from a consultants appointment where they have told me I have probably got myeloma. It started with leg pain and over the last few weeks I have had lots of scans. They have found it in the bone marrow of my hip joint/pelvis. They...
Hi, It has been nearly 2 moths since I had my high dose chemo and stem cell transplant, it was rough in the hospital but the worst thing which is really affecting my well being it is the food's taste,which is absolutely vile, can't find words to describe...
I had a tumour removed from my spinal cord 7 weeks ago, I still can’t walk unaided, I was first diagnosed with NHL but now I have been told it’s myeloma, I am totally devastated I can not stop crying and thinking this is the end for me at 56. I have a...
I am just about to start a week of Radiotherapy then chemo the next week which I am dreading any advice would be appreciated
Is an SCT considered to be the best and most appropriate course of treatment after 4-6 months, even if chemo is going well. An SCT seems to be quite an ordeal with the potential to set you back for quite some time, so can it be declined. Thanks
