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Hi Everyone, my name’s Russell. My dad recently got diagnosed with mesothelioma and has had his first immunotherapy treatment today. Honestly im struggling with the thought of losing him, he’s my hero. He has had diabetes from a young age and has dealt...
My husband is on the 2ww for suspected mesothelioma, he's had a couple of x-rays and a CT scan. He has a face to face appointment in a couple of days with a consultant. I cant help but think that because it is a face to face appointment that it will be...
Hi, I was diagnosed with Pleural and Peritoneal Mesothelioma in Nov 2023 at aged 50. My Mum passed away from the same thing in July 2022. We both have BAP1 Tumour Predisposition syndrome which does give us a better prognosis. My Mum lived for 7 years...
My husband was also diagnosed end of May with mesothelioma,he had 4 rounds of immunotherapy , unfortunately it didn't work for him and he was too weak for chemotherapy.Sadly he passed away in November.Life has never been the same ,it's a rollercoaster...
Hello everyone, I was diagnosed with Mesothelioma in July last year 2024, I have only 30% lung capacity/function so a biopsy can not be taken and no anaesthetic as I would not survive the op. I do have a 40 year cough which now makes be breathless especially...
Hello all, My husband is about to have his 5th treatment on Immunotherapy. His breathlessness is still his main problem. We thought he had a few improvements here and there but in general, his acute breathlessness appears when he lightly exerts himself...
Hi I've recently got back in touch with my dad after years of losing touch,. He has been diagnosed with mesothelioma he's 77 years old and was a electrician for years. He was given a small dose of immunotherapy in December but he is confused and doesn...
i am on immunotherapy since jan 24, gaps to treat sude effects. Always had full head of hair much admired, 74 now. Last few weeks thinning like mad, help ??
For those of you who have had or relative chemo after immunotherapy not working did the chemo help. My dad has pleural mesothelioma and started immunotherapy end of August his November scan showed it wasn’t working and the cancer had grown:( it was such...
Has anyone else experienced this? My husband had 15 rounds of immunotherapy, and then moved on to chemo as the cancer was still growing. He has two rounds of chemo left, and his consultant has said he will then be on ‘watch and wait’ with periodic scans...
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