Has anyone else experienced this? My husband had 15 rounds of immunotherapy, and then moved on to chemo as the cancer was still growing. He has two rounds of chemo left, and his consultant has said he will then be on ‘watch and wait’ with periodic scans. The latest scan showed the cancer is still growing, albeit only slightly.
My husband gets into a state of really high ‘scanxiety’ whilst waiting for scan results each time, and has accepted that the scan results are only going to be progressively worse, so he has said he doesn’t want to put himself through that anxiety each time, just to be told the inevitable…he’d rather just get on with living until his symptoms become problematic.
Just wondering if anyone else has had this situation? It goes against all my thinking, as I feel it’s important to keep tabs on it, but it’s his body and his life and I suppose I have to accept his way of doing things.
Not really a helpful reply I suppose . At the moment I wish I was getting more scans. After quite a period of all ok I have had a few side effects meaning stop start immunotherapy.,my last scan a few weeks ago showed I had developed a pulmonary embolism on top of everything. Its possible I could have dropped down any moment but for that scan, now on blood thinners. I think it is always worse for our wives or husbands who have to watch and will be left eventually but I guess it has to be our choice how we handle our illness. However at the same time if my wife wanted me to have the scans so she knew what was happening and that made her feel better I would do it I think.
Thanks for taking the trouble to reply. My worry is that my refusing the scans we might miss something like your pulmonary embolism. I’m hoping our nurse may be able to help him see that the potential benefits outweigh the negatives
Hi again, just to add, apart from the discovery of the embolism I was also told my tumour was grossly unchanged since last scan which was good news. Of course it could have been the opposite which I assume is your husbands fear. Such a difficult one.
Thanks again - and all the best for your continuing battle with this horrid disease
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