Good evening My dad had first consultant catch up today following his biopsy Mesothelioma diagnosis last month and was told Immunotheraphy is the treatment he will be starting which is every 3 weeks for 2 years! They said he said stage 2 -3 though is...
Hello Everyone , My prof is very keen to have me start the Mitope treatment trials . Anyone have any experience of this to share ? Thanks
Hi, Its looking like I have pleural mesothelioma and peritoneal. I have agreed to go down the VATS ( video assisted thoracoscopy) procedure for confirmation diagnosis. However, after reading the paperwork about it, it has frightened me as the after...
Hi all, My Dad has been receiving immunotherapy for the last 5 months. He has lost so much weight from it, probably about 3 stone and has very little appetite. He is also struggling to get food down and has had ulcers on the back of his tongue! He...
My dad was diagnosed with Meso in the summer and has undergone immunotherapy treatment. He’s just had his first CT scan and the doctors in Bristol are saying the treatment isn’t working so therefore they are stopping. He was offered chemo but because...
Hi, has anyone had crazy high temperatures with pleural mesothelioma? If so, how do you manage it? mums been having temps of 38, 39 and even 40.2 c. She’s been stuck in hospital for over a week while they try and work out what’s going on but there’s...
My husband had VATS procedure on 3 November where biopsies were taken. He also had the talc treatment which seems to have stopped the fluid buildup. We are meeting with the consultant tomorrow for results, although they indicated very strongly that they...
Hello, my husband has been on immunotherapy for a while,!but I have noticed at nighttime his body has started to twitch quite a bit … not sure if this is a side affect of the immunotherapy, has anyone else heard of this ? Just a bit concerned…
My husband started immunotherapy in April. It was suspended in July due to all the side effects - mouth ulcers, loss of taste, severe diarrhea, jaundice, gallstones and drug induced hepatitis. He was put on steroids due to the diarrhea. It started to...
Hi, my dad was diagnosed on 1 December. He had his lungs drained and then talc inserted and a permanent drain in January which resolved the breathlessness and tiredness. He started immunotherapy (ipi/nivo) in February and had 2.5 rounds before being admitted...
