Hi all Just putting my current situation out there. Pleural Meso. Diagnosed Dec 23, as otherwise fit started immuno Jan 24 with usual 4months to possible year prognosis. Second treat major reaction, thought I had had it. Sirted with Steroid and Antihistamine...
Good Evening i am shruggling my dear dad passed away on 4 May . he suffered this disease for exactly 12 months and 10 since treatment. so cruel so unfair. Following terrible chest pain which they finally got on top of with higher morphine doses they...
Hello everyone, My husband is about to have his 2nd Immunotherapy treatment. So far so good, even if it’s early days. His breathlessness is getting worse though. We know from X-ray that he has fluid again and he’s had pleural effusion drained twice...
Hi all, I really need some advice, as we have a meeting tomorrow in Guy’s about my husband’s treatment. My husband is at the three month point of immunotherapy. His oncologist wants to change his treatment to chemo. She’s based this on comparison of...
Hi all, my husband had 3 months of immunotherapy but scan showed cancer progression. Now he’s started Chemo and will hopefully have his 2nd session next week. He has almost constant background pain, in the site of the cancer. Has anyone had chemo, even...
Hi, I was diagnosed with Pleural and Peritoneal Mesothelioma in Nov 2023 at aged 50. My Mum passed away from the same thing in July 2022. We both have BAP1 Tumour Predisposition syndrome which does give us a better prognosis. My Mum lived for 7 years...
Hello all, My husband is about to have his 5th treatment on Immunotherapy. His breathlessness is still his main problem. We thought he had a few improvements here and there but in general, his acute breathlessness appears when he lightly exerts himself...
Hi I've recently got back in touch with my dad after years of losing touch,. He has been diagnosed with mesothelioma he's 77 years old and was a electrician for years. He was given a small dose of immunotherapy in December but he is confused and doesn...
i am on immunotherapy since jan 24, gaps to treat sude effects. Always had full head of hair much admired, 74 now. Last few weeks thinning like mad, help ??
For those of you who have had or relative chemo after immunotherapy not working did the chemo help. My dad has pleural mesothelioma and started immunotherapy end of August his November scan showed it wasn’t working and the cancer had grown:( it was such...
