Well, I was a touch overly optimistic in my last post. Turns out the lung clot was a symptom of the mcl returning. So now I’m being advised to start ibrutinib along with the blood thinners etc. I’ve read a bunch of somewhat scary info on the drug...
I was diagnosed with Mantle Cell Lymphoma five years ago and have been monitored with blood tests and visits/phone calls since then - I am 72. Overnight, about five weeks ago, a large lump appeared in my groin so made an appointment for an examination...
Hello all... I've gone three years now since diagnosis, chemo etc. And I find myself wondering about the timespan of others in the group?
I just want to drop in past to wish all our new and long standing group members and their families a healthy and safe 2023
Hi everyone, We’ve launched our annual survey for 2022! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
Trigger warning, this message relates to the death of Woodland Fells. Woodland Fells was my wife and asked that I post here in the event of her death. She felt that it was important that people knew how her story ended rather her just disappearing...
So in an attempt to see if people are actually here I'm hoping for some replies.... come on you know you want to ;) Is there anybody out there????
Hi i was diagnosed January 2020 and finished treatment in following July. By January 2021 I had a few symptoms cropping up and had a scan and apparently I’m 1mm away from more treatment but that was, as I said, 18 months ago. My consultant and MacMillan...
Hi, I'm yet another new member of the MCL forum ..... I'm led to believe that I might be one of the younger people here as I am 49
Hi everybody, my hubby was diagnosed just before Christmas, at first they thought it was an aggressive bowel cancer. He had an operation to remove the tumour from his bowel and they then told us it was a lymphoma. We have now been told that it is mantel...
