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Surely I can't just give up. AML TP53 has returned to be resident in my bone marrow. I was in remission since Jan 2022 and on track for a Stem Cell Transplant but I am now told thats off the cards and nothing else can be done to treat relapsed AML...
Hi anyone else had this happen, I was diagnosed with Acute Myloid Leukaemia, Severe Neutrapina and MDS that was a month ago! The consultant advised I get my things in order, inform my wife and children and take everyday as a bonus as I didn’t have long...
Hi everyone, I hope it is ok for me to be part of this group. My husband was diagnosed with CML in Oct 2020, he has been on Imatinib & then Dasatanib but unfortunately his bloods haven't had the response his consultant was hoping for so they are applying...
My son has AML diagnosed 2weeks ago his chemo is being delayed due to spiking temperatures and infections in his mouth. He is due to have 10day intensive chemo should I be worried that it's not started ? I am at my wits end don't feel I can cope much...
Partner diagnosed with aml has had a few rounds of Chemotherapy now requires Stem Cell transplant, found 2 matches but transplant has been put back twice due to issues with donors has anyone had a similar experience, is this normal we built up to this...
Good evening all, My Dad has MDS and other things possible unsure of what a lot of the jargon means to be honest., Unfortunately he is not able to have a bone marrow transplant due to his heart. I can see him declining before my eyes and I’m just finding...
Hello I've just had confirmation that I have CLL. I'm on watch and wait. Do I tell my adult children? My brother? I don't know what to do for the best
Dear All My dad has been diagnosed with myelodysplastic syndromes (MDS). Please can anyone advise which drugs will be useful to him. We have been advised for azacitidine. he is based in india and the drug is very expensive there in the range of £11000...
Hi I was diagnosed with HCL on 6 June 2006. Yes 6th of the 6th of the 6th. ironic eh? I would really like to meet anyone who has Hairy cell leukaemia (HCL too). Anyone out there?
We lost my sister to ovarian cancer a year ago. She went through chemo and was hospitalised more than once with Neutropenic sepsis.. Her journey through this disease was horrific. A couple of months ago my 95 year old mum was diagnosed with CML. Her...
