Surely I can't just give up.
AML TP53 has returned to be resident in my bone marrow.
I was in remission since Jan 2022 and on track for a Stem Cell Transplant but I am now told thats off the cards and nothing else can be done to treat relapsed AML TP53.
Haemotologist and Addenbrooks will look for clinical trials but I'm not to hold my breath.
I can't give up, never, anything you all can suggest please?
Weird, as my son has had a sct and if he relapses can potentially have another one. Obviously Im in no way a professional. I rely on the nurses at Anthony Nolan for a lot of information (Rachel who is lead nurse is great support and so knowledgible) why not try giving her a ring. Nothing ventured nothing gain as they say. Also maybe ask if the marsden can be consulted although I am sure they are already doing that with all the world leader centres. Is it just the chimmerisms that have detected it or is it back in the bone marrow?
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007