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Hi, I joined this community early December. At the time we thought my other half had CLL. Unfortunately, we received the devastating news yesterday that he has T-Cell-Pro-Lymphocytic-Leukaemia. Apparently, this type of leukaemia is aggressive and rare...
Hi everyone, We’ve launched our annual survey for 2022! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
Hi, I have newly been diagnosed with ALL and would love to chat to people going through treatment or people near the end of treatment as feeling quite lonely with it all. I was also thinking of setting up a blog to record my journey and wondered if...
Hi everyone, this is my 1st comment on here as I didn't know what to say or how to ask for support. I'm not entirely new to having cancer as I suffered stage 3 bowel cancer in 2011 which required a number of operations and Chemo-Radiotherapy before full...
Have just joined. I was diagnosed with ET (Essential Thrombocytosis) in November 2021, Its been a sharp learning curve. Hoping to find support and information here.
I. Am a new group member and have had AML for 8 months. Anyone in similar situation?
Hi All, I’m new on here although joined this forum some time ago but haven’t gotten round to posting anything yet. I was diagnosed with CML in May 2020 (7 wks in to lockdown) completely unexpected. Started on Imatinib and all things considered I’ve...
just wonder if anyone has this disorder and is sixty im in pain and know nothing about this disorder only the basics would like to here and know more.if anyone can help me to know more i would be grateful. thank you Jill.
Hi I was diagnosed with cml in December 2020, I have been on imatinib since Jan 2021. I am happy to say it is working well. However I am have problem with my weight which is getting out of control and I'm getting more and more depressed about it. Has...
Hi all, im 32 mum of 2 boys 10.7. I was diagnosed with CLL on the 27th May 2022. I’m totally blindsided I have no idea what’s in front of of me, what to expect. I haven’t told my children yet until I have more answers I wouldn’t even know how to start...
