Vocal cord cancer

Hello Paulineg1, hope you have recovered from your surgeries , the reason they follow up with radio and chemotherapy is to try and make sure they get rid any stray cells that maybe around the area . Try not to be to worried as its not as bad as it sounds or seems in many cases  with side affects varying from person to person . My radio and chemo was for floor of the mouth cancer and i got through it ok ,the main effects i had were  tiredness and fatigue . Best wishes .

                                                                      Chris x

I well done pauline you are brave takin the chemotherapy

Hi had appointment yesterday 

Hi I don’t know if u can see my reply to Chris 

But all change now only radiotherapy although very daunting I am trying to stay positive

I still cannot believe I have this 

Thank you hope u ok to 

Also I do have to have some teeth removed before and treatment on teeth so also be gummy till after treatment they said will them do dentures or wat ever needs I really don’t like this thought but I make me feel positive 

Also they saying about peg feed fitted before hand in case gets to sore to eat or a nose feed tube thing xx

Hello Paulineg1, yes do try and stay positive as you will be in good hands , they sometimes remove teeth before treatment so they dont cause any problems later on and it makes it easier for them to do the radiotherapy . Its suprising how good the dentures are once they are done , i had some made up and they looked ok and done the job . I also had a peg feeding tube fitted but some have the NG tube which is through the nose , i think i would choose the peg as it is out of sight and quite easy to use and look after but some will go for the NG as i think its easier to fit and remove . As you say the reason they fit these is because sometimes swallowing can become a bit difficult during the radiotherapy , hopefully you wont have to use any of them but have one fitted just in case rather then get half way through and struggle . Will be here if you need any more advice or reassurance , take care .

                                                                         Chris .x

Hi thank you I have been trying to stay positive 

But so much conflicting diagnosis treatment plans between the two hospitals I have to use 

I really don’t know what is right or wrong no more and after  Monday appointment I am more against having radiotherapy done 

This has become a nightmare 

I need all to be agreeing and saying same thing 

On the stage the treatment and side effects it I really don’t think I can go through it ☺️☺️

From my own experience of my surgery, ask your Oncologist and surgeon how much difference having radiotherapy would make to the outcome. In my case, they said that it would only help by 10%, and balancing that against all the side effects, I decided to forego the radio and just have the surgery. Now 18 months on, My speech is getting better ( with voice valve in place). It does get better once you are given the right advice, so insist on it.

      Good luck

I tried to call yesterday my hospital 

And today and also other hospital cud not get through to no one 

Have spoke to my surgery yesterday and today waiting for them to get back to me 

And said basically to much difference in info off both hospitals and until I have some reassurance 

I am not having any more treatment 

I think the side effects are horrific during and later on after and to much 

Hi paulineg1,have just been looking at your posts and just to try and reassure you I was diagnosed with advanced cancer of my vocal cords which had spread to my subglottis (windpipe) and I had 42 fractions of radiotherapy and six weeks of chemo and the side effects are not as horrific as they may sound I did not have a peg or a nasal feed tube (my decision). And I helped myself by eating little and often and later into my treatment started using softer mushy foods and loads of ice cream which really helped if you have a specialist nurse at your clinic you should have access to her to discuss any problems or fears.and they are worth their weight in gold and are a great help throughout your treatment and afterwords in follow-up clinics so please talk to her I'm sure she will be able to reassure you just remember that the whole cancer team at your hospital will be working in your best interest and they will take good care of you treatment sounds daunting but don't be put off give it your best shot.hope this helps.