Laryngectomy

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About to be discharged from hospital after laryngectomy on Jan 7th.

Any tips/ hints/ useful tidbits please?

Have a fairly able (?!) husband at home 

  • Hi Scaredstiff- welcome to the forum, I’m Tony one of the Community Champions, as you will see I’m a Laryngectomy of 5 years, yes it’s a big changed in so many ways but firstly I hope you have as I have extremely great support from your Speech Therapists, they will be as I put your Guardian Angels no matter what the problem is.

    It take a while to get used to the change of your way of life now, you don’t mention if you have had a voice valve fitted for talking – I do hope so as it makes life so much better that we can communicate,

    I can go on forever with suggestions but if you wish to get back to us with any particular questions there are about 3 of us that have Lary’s – this is some links that you may find helpful as well :

    An excellent Charity called Swallows- Head and Neck Cancer Support lots of support and freebees !

    https://theswallows.org.uk/

    Facebook Group – Excellent Group of fellow Lary’s- Life after Lary- they are now a full Charity

    www.lifeafterlary.co.uk

    Atos Care, they have an app that will give you daily support tips and information useful even if you don’t use Atos as your supplier of daily items

    Atos MyLife

    Laryngectomy Club : Lots of support and information freebees as well

    https://www.laryngectomy.org.uk/

    Cancer Research Laryngectomy Explained :

    https://www.cancerresearchuk.org/about-cancer/laryngeal-cancer/treatment/surgery/types-surgery

     Take care and trust you have a full life ahead like I have

    Tony

    Community Champion Badge

    We will move mountains to help people with cancer live life as fully as they can.
    We'll do whatever it takes. For information, support or just someone to talk to,

    call 0808 808 00 00 or visit www.macmillan.org.uk

    Onwards and UpwardsWink 

    Voicebox Cancer- Laryngectomy 2020 and Oesophagus survivor 2022

    Adminitrative Assistant at Frimley Park Hospital, Cancer Support Hub

  • Hi Tony!

    Thank you so much for listing the various websites.

    Like you I'm finding the SLT team fantastic.

    Keep on, keeping on, as they say,

    Regards

    Annie