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Although treatment on pazopanib is going well, we all know this is mainly life prolonging and has an end date in its effectiveness over time, I'm currently at 1200mg daily, what are folks doing in second line treatments Trevor
Hello my husband has been diagnosed with stage 3-4 kidney cancer and we have been told its not curable but treatable , he's got his st scan on Wednesday after having 4 immunotherapy sessions. I'm trying to be positive for him when I just feel so depressed...
Hi everyone I’m new to the group had my right kidney removed 12 months ago after being diagnosed with stage 2 kidney cancer at the same time I was diagnosed with onset adult stills disease which is quite rare I’m just wondering if anyone on here has...
I will be having a radical nephrectomy (kidney removal) followed by two weeks of a catheter. I'm wondering how to cope with this because I found it very painful when I had a biopsy. Also, it leaked! Should I buy a plastic mattress protector or some other...
Had my consultation on Wednesday tumour is 11.5cm so they are taking the kidney out, I have preoperative assessment on 15th so things are moving along
Hi everyone First off, I must stress this is by no means "scare mongering". Only genuine concern and passing on relevant information, for everyone here! I noticed today an email that had gone directly to my junk mail , 3 days ago. Heading was (Important...
Afternoon everyone Just wanted to check in, it's been 12 months since my stage 2 RCC partial nephrectomy. My head is just not doing well, I feel lost and low today, since my operation I am fed up of feeling ill all the time, I seem to be getting everything...
Has anyone tried this or are on this? I am probably starting immunotherapy soon and would like to know about people's experience of it please. Ipilimumab and nivolumab have been the ones mentioned that the oncologist wants to use.
hi all ,, does anyone remember the name of the book that many people said was a big help in coping ,,,I can't find the thread again .... just know it was a female author .. any help much appreciated
Dear All my wife Val was diagnosed with Metatistic RCC in January 22. She had various scans and started Ipi/Nivo in August. After her scan in November, her oncon phoned to say "great news! your tumour has stopped growing". Now on Nivo only, her last...
