I will be having a radical nephrectomy (kidney removal) followed by two weeks of a catheter. I'm wondering how to cope with this because I found it very painful when I had a biopsy. Also, it leaked! Should I buy a plastic mattress protector or some other kind of bed protectors or big nappies?
Hi Tinypixie and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I can't help with your questions but noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list where it'll be more easily spotted.
If you don't get any replies, could you ask your CNS what she would recommend?
It would be great if you could pop something about your diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
Going in, is usually while you are under. It can be a little unpleasant being taken out but nothing too bad, but is done as quickly as possible. Speaking for myself, I didn't find it too embarrasing, as there was so much going on and I had already been through quite a bit. If you still have one after being discharged, the district nurses are really good and very understanding - TinyPixie, the nurses will help you as much as you need with advice.
My experience was completely unrelated as it was (open heart surgery), but catheter was the same.
My nephrectomy is on hold atm, to address a secondary 1st.
Good luck with yours Tomcat and yours too TinyPixie if still waiting.
I had one after my nephrectomy, and honestly post operation it’s not that bad. You’re not really in a position to move around to go so it’s a lot better than the alternative! And you’re on some really nice drugs so the discomfort is minimal….what’s more annoying is them coming to check it repeatedly all night long haha. Sleep isn’t easy!
I had one before the op too due to blood causing bladder issues, and that was waaaay worse.
Fingers crossed for you both!
Just one thing to note after it's taken out and your probably already back at home. There may be a small chance of a urinary tract infection. As a result of the Catheter. Only a very small chance! - What to look out for is (well, you'll know), pain while peeing, and or passing blood, unrelated to surgery (but check with doctor). Clears up very quickly though, with anti biotics.