Immunotherapy for stage 4 kidney cancer

Yep, there's lots of us on immunotherapy in this group.  I'm on ipi/nivo since Jan 2022 - a big fan!  Just off to QMH to get my monthly top-up of nivo in fact 

on immuno here having good results as well my tumour down by 1.5 cm

Yes, I've been on this combo since August 22. Haven't had any of the possible side effects so far, and I now go for treatment once a month. It is having good results! The treatment procedure is straightforward, and you'll find the nurses in the treatment clinic are really supportive, caring and reassuring. At least, they are in my hospital! It does take time though, so take something to occupy yourself with!

Hi, I used to be on a different immuno combo, I started in May 2021, had probably most of the light side effects, nausea, loss of appetite, loss of weight, rashes, diarrhoea, swelling, hands and feet syndrome (huge painful wounds on hands and feet), and a very rare problem with myelitis. 

The medication affects your whole body, not just the cancer cells, in the first few months it’s really good, no side effects, then later on people usually have some problems, but everyone goes through them differently, some people better than others. 

Hi Lucy, I’m on Ipilmumab/Nivolumab combo for the last 18 months & it’s working really well for me, I’ve had a few side effects but nothing that I can’t live with, I hope you treatment goes as well as mine 

I have been told will be starting this treatment in the next 2weeks. Its going to be haard but have to fight for as long as ICan as been told could be 8mths even with treatment. 

What side effects did you have? 

My side effects are itchy skin, dry throat & blocked sinuses, the worst is adrenal insufficiency but I’m on daily tablets for that

Hi Fermer let’s hope the treatment helps you

Thankyou just have to get on with it. I ken its going to be ruff but I am no giving in