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One of the things I’ve found really hard is telling people about my diagnosis, it’s felt re-traumatising every time. So I decided that as soon as I knew whether it had spread or not, (it doesn’t appear to have), I’d just tell everyone and be done with...
Good Morning As some of you are aware I had my surgery a couple of weeks ago. I have not yet received details of the pathology results or a follow up appointment. How long does this typically take? Trying to be patient but not my strong point! Any...
Hi my husband was diagnosed with incurable kidney cancer 20 months ago, immunotherapy didn't work for him so he went onto the chemo tablet ( can't remember the name) he's lost 3 stone since starting his drug with not nice side effects , he's also on blood...
I was diagnosed with kidney cancer yesterday. And today struggling with trying to stay positive as everyone says. I just want to shout I don't feel positive! Operation to remove kidney and pipework due in 4/6 weeks which I'm also struggling to imagine...
Hi I went for an ultrasound scan to check for gall stone s on 29th July this year, which was negative but unfortunately something was found in my right kidney. I was told that very same day it was possibly a Cystic Mass. I was sent for a CT scan on 12th...
Hi all i have my op this Saturday and have the pre op drinks in my fridge ready to take on Friday. The letter says to have 4 the day before and 2 on the morning of the op. I’m just confused as I’m supposed to be nil by mouth after midnight… I have to...
I have an inoperable kidney tumour and all the treatment i have been given gives me horrible side effects and makes me ill. They have tried immunotherapy and currently targeted therapy. The consultant does not come across as very positive when I see her...
Hi All, wondering if anyone developed any pins and needles in their arms or hands after their operation. It's been around 4 weeks now that started moving more and at work etc, I keep getting pins and needles in my right hand mainly... to the tips of fingers...
Hi all I'm new on here, I have been told I need to have my left kidney removed due to a tumour. How do we tell the children who are 11 and 9 what's happening and they believe I have cancer Any advise would be appreciated Thanks
Hello, first time poster here. I had a radical nephrectomy 2 months ago and got my histology results today. It turns out I have rare form of kidney tumour called a Translocation carcinoma. There have been very few studies due to it being quite rare so...
