My wife had her left kidney removed in July due to a cancer diagnosis, although this was subsequently found to be a liposarcoma. At a follow-up meeting with one of the hospital's sarcoma nurses she was told to avoid caffeine. We forgot to ask if this...
Last ct scan I got results in my NHS account and and instead of hospital appointment I got only a phone call whit nurse. Now I had my ct scan and nothing in my NHS account. I had my hospital appointment on Thursday this week. I wander if it’s something...
Having gone through a really tough time this year, namely the cancer diagnosis of Larry the Lump, then losing my partner's mum, and subsequently him losing his job, I would have thought that's where the bad luck ended. Fast forward a few months, and having...
I recently passed the 4 year anniversary of my surgery (partial nephrectomy, left kidney) which normally is just a day like any other for me since 'Kidney Kardashian' was excommunicated, but this year it's hit me so much harder than it ever has before...
So I was diagnosed with NHL as primary but there has been some discussion on my RCC due to a benign biopsy in 2019. I am not in a position to have transplants etc as I have 3 autoimmune diseases and with NHL there's an even higher chance of rejection...
I started treatment last December for mRCC. I was prescribed with 40mg daily Cabozantinib and 4 weekly infusions of Nivolumab. I had these treatments on and off due to high blood pressure and other effects but the fatigue, lethargy, lack of appetite and...
Hello Everyone lots of very helpful advice and sharing on this website - a big 'thank you' to everyone who contributes. The reason I write is that my wife's treatment seems to have changed. She has Clear Cell RCC and was put on Ipi/Nivo nearly three...
Hi all, been a while but I've come back to do an update, hope everyones doing well. Its been 6 months since my op, i had my first scan a few weeks ago, they brought it forward as i was experiencing pain in my side, but everything is clear and there...
My mum has now been put on palliative care, she was only diagnosed with stage 4 kidney cancer in may, such a shock to everyone, we seen the oncology just on Friday & they decided not to treat her, as treatment could actually shorter her life, we haven...
Hi all, I've not been on here for a while, but I feel I am really struggling - everything I do seems such a chore, and I end up having a major meltdown. Today I had to drive the car home, where my partner had parked it up. I literally had the biggest...
