Caffeine after nephrectomy

Hi Steve,

I also read this before I had my partial nephrectomy for RCC. I too couldn't find out if it was temporary, permanent, related to partial kidney or full kidney removal or kidney disease. 

I therefore played safe and bought a jar of good quality decaff coffee, and used that until the jar ran out. I am now back on normal coffee as nobody suggested that I should avoid caffeine. I actually like the taste of decaff better, and I forget that it is decaff! 

So I can't really help, practically, I'm afraid. Until you can get to ask your consultant, why not give the decaff a go for a bit?

Thanks Maite, 

I dunno how you pronounce your name, but my intro sounds quite Cockney or Estuary :) 

I've also posted this on the Get Help section, so hopefully we might get something from there. 

I'm afraid I've got more discerning (or just plain snobby!) over the decades and just buy beans now rather than instant and we're finding these are quite a bit darker than our usual taste. So at the moment it's me on the decaf and Anne's just going without! She's recently started having issues with taste - either not being able to taste things or they don't taste right, even water, so another reason why she's not having any. 

I've come across decaff ground coffee before...don't think it's possible to get the whole beans in decaff version though, as I'm not sure how they'd remove the caffeine from whole beans.

Maite is my user name but it is actually also a name in its own right. It's French or Russian. A previous dog of mine, I named Maite and people couldn't pronounce it! so I shortened it to Maya. Maite is pronounced "Ma-ee-tay".

Yep, you can get decaf beans  There are a couple of different methods of removing the caffeine, some with chemicals and some without.

We asked the same question about caffeine in the "Ask a nurse" section here and they implied that it's based on the individual really. So we contacted the hospital sarcoma team again and they said there's no reason for Anne to avoid caffeine. I'd suggest other people could try the same approach if they're uncertain.

I'd  have guessed at Spanish for the origin of Maite - wrong again!

I've just looked it up and you are right, it is of Spanish origin! It says Basque or Spanish. The Basque connection is maybe why it's popular in France. But it is also used in Russia. 

1. No one told me to avoid caffeine after my nephrectomy although i dont drink too many anyway

Hi Doris, I guess it possibly depends in some way on who you see and their thoughts on the matter. I suppose it could have just been a caution - as in possibly giving the remaining kidney and the rest of the body a bit of time to adapt.

At the moment Anne isn't too bothered about not having much caffeine - tends to be possibly a small coffee with breakfast and maybe a tea later on in the day. I've nearly finished her decaf now!

Maite - ooh, you don't wanna mix up your Basques and your Spaniards

Bretons and the French aren't quite as bad, although the French courts have got involved with having a tilda over the N in the Breton name Fañch!