So I was diagnosed with NHL as primary but there has been some discussion on my RCC due to a benign biopsy in 2019. I am not in a position to have transplants etc as I have 3 autoimmune diseases and with NHL there's an even higher chance of rejection and I was born with one kidney . I done months of Doxorubicin and my NHL got to a stage where we could carry out cryotherapy. My highest prognosis was a year at 55% without cryotherapy. So we went for it and bought me some time 3 years being the highest at 76% 4 sat at 50 but would be unlikely and 5 years was 6% the biggest contender being I have MS and if the cancer finds it it's pretty much game over and it can become a rare type of NHL something to do with the CNS - I went to my appointment alone like an idiot and still wonder if I need to be psychology accessed or is this really happening to me.
Now this is where I'm going down rabbit holes, I had cells on my left lung which we chose to wait and see. Recently they have said it's closer to grading stage 2 and I've started chemotherapy today (happy birthday to me) they've said that they should be able to eradicate the tumour fully as long as they don't reawaken anuthing. The tumour on my kidney shrunk slightly and hasn't changed, but that means it's not mastised either, so why have they found a tumour in my lung that is new if everything is good and why after paying for my funeral and organising everything through fear of spreading am I being told they could potentially eradicate the lung?
Has anyone experienced this? Ot have any input or theory? I'm acting like I'm so happy and life is good and I'm literally crying whenever I'm alone because I am dying alone apart from 1 person and I can't make her miserable anymore but I also feel like I can't talk to her anymore cause the information is so conflicting and confusing and I'm scared my only friend and support leaves or disbelieves me. I'm so lost
Hi TheCrimson8223fc and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
While you're waiting for replies, it would be great if you could put something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
I'm sorry to read that you got locked out of your previous account. I presume you mean that the password you put in wasn't recognised. If that happens again select 'reset your password'.
When you have a minute, could you email the admin team at community@macmillan.org.uk please so that they can merge your profiles as you can't have multiple accounts registered.
All the best with your scan and treatment discussion.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
