Hello all, me again. Those of you that have had surgery, did you spend most of your time in hospital wearing your nightclothes whether in or out of bed ? I was wondering about that as I know that storage space is tight and I will only be able to bring...
I stopped taking Lenvatinib on the 5th of August as surgery is happening on the 26th. I cannot believe how much better I feel. My appetite which had been pretty much none existent for several weeks has returned and my energy levels are much improved....
Had my first prembo treatment on Thursday amazing nurses and doctors as it’s quite overwhelming made me feel at ease feeling tired achy but otherwise ok hope it continues like this fingers crossed how’s everyone feeling?? take care x
Hi all I'm waiting for my partial nephrectomy in a few weeks. Could somebody who has had a radical or partial give me an idea of what happens on the day when you arrive at the hospital until you're good to go? I'm having mine at the Royal Free in London...
Hi, I just thought I would post about recent activity: In September it will be 2 years since I started immunotherapy for stage 4 RCC I am on the Refine trial and receiving maintenance Nivo every 8 weeks, last week I had my penultimate dosage and my...
In April was rushed into hospital as very unwell only to find out that my cancer treatment has now caused me to have Type 1 diabetes. Its been a struggle to come to terms with all of this as now having to inject myself 4 times a day with insulin. However...
Hi everyone Can I ask what your diagnosis and treatment timelines were like? Specifically for T1a? My kidney lesion was discovered incidentally at the beginning of November 2025, I received my diagnosis on 7 April 2026 after a biopsy in March and...
Dear All, I'm 12 days post op. Kidney tumour removal . Can sit on a good sturdy dining chair with a pillow behind my back. However struggling to sit my sofa as it's quite low and quite deep! Anyone else have any ideas on how to sit comfortably? I purchased...
Hi can anyone tell me if it’s possible to get an infection. My mum has started to have blood in her urine today and keeps feeling hot and feels really tired and keeps falling asleep. We called the doctor and he has prescribed some antibiotics which I...
Can anyone tell me how quick you started to feel better after immunotherapy started. My mum had her appointment with her oncologist today, they are still waiting on some test results to confirm what treatment they will give but spoke about Nivolumab and...
