Timeline to diagnosis and treatment

Hi

If you click on my name you will be able to read my profile and timeline.

Like you I found the waiting time for surgery stressful. I know that the surgeon who was doing my nephrectomy covers 2 different hospitals and only does 1 a week in each hospital so it may be something like that causing your delay - it could be a question to ask your consultant’s secretary.

Good luck and hope you get seen soon

Good afternoon, 

Each journey and treatment plan is always very individual. Although some details, times, treatmens and suegery can be very close to others. Which is wnybits great to share our worries and concerns. They will always be someone who has been there too. 

Its a worry no matter the size and its very normal to worry and be anxious with waiting till July. Do you have the contact number for the urologist nurses? As they can offer and seek the answer of its okay to wait. 

Mine was large at 12cm so had to be fully removed and I think they seen it was aggressive as they can some times see this on scans in some cases. 

So my advice is try not put a pause on your life to much and still try and do all the things you enjoy. Recovery does take its toll some times and can linitsd things for a while after.

I know its very eaiser said but I kept working and doing things the best I could till the weekend before my surgery. I tried to just take each day and still kept to plans, shopping, meeting friends and family. 

Please call our helpline to they are so wonderful and can offer furthur support and advice. 

We are all here to listen and supprot you every step of the way. 

Best wishes, 

Jamie 

Hi my mum is on month 4 now with still no treatment. Her cancer is incurable but treatable. She has got to have another biopsy tomorrow and then she will need to wait again for the results. I totally understand how you feel because I feel the same about my mum. She gets more poorly every day and I just want her treatment to start so she can hopefully start to feel a little better x

Hello Ariel

having received  her diagnosis,  you'd think that everyone would be running around trying to schedule your mum's treatment as soon as possible, but it doesn;t work like that. It's very frustrating; my wife had to wait five months before any actual treatment despite her diagnosis as having stage 4 metastatic kidney cancer. We were besides ourselves with worry, but now, over four years later, she is classed as ;'stable disease'. Everything will 'kick in' once she has had her second biopsy - her care has to be slotted into your oncology team's schedule and further diagnosis, which is probably the problem. That said, you should reassure your mum that once her treatment starts, she will be given the very best care and, as you say, "it's incurable but treatable". 

All best wishes, Bodger

Hi Bodger. Thank you so much for your reply. My mum went for her blood test today for her biopsy tomorrow but she had a call this afternoon and her kidney and liver have came back low so we’re currently at the hospital waiting to see a doctor. It’s so stressful. So pleased your wife is doing well, gives me hope for my mum. 

Hi Ariel,

I am so sorry to read this. I hope they get something sorted soon for you both. It is such a stressful time and still being uncertain of what is to come is stressful. I hope now being in hospital you can get more answers and a more detailed plan. 

Take care and sending my thoughts to your mum and you. 

Take care, 

Jamie 

Thanks Jamie. My mum has been admitted for the night. I’m hoping now she is in there they can get her sorted. She just looks so poorly and the waiting is agonising. I’m so worried that the longer she has to wait she will get worse and they won’t be able to treat her.