Immunotherapy 1st one

Pleased it has gone well for you I have my first Pembro on the 18 th so you’re a little ahead of me x

Yeh thank you 

didn’t know what to expect to be honest like am I gonna feel or have any symptoms straight away up to now I feel ok just tired but if a upset stomach but manageable 

hope everything goes well for you

best wishes 

Donna 

I am pleased its gone well. I have just had the odd cold and chills feeling. Painful joints so far to. All manageable with paracetamol. 

My next dose is 11th April, but found it to be all to be straight forward and all done in 45 mins. 

BW 

Jamie

Hello 

feeling it these last two days

so so tired

feeling sick. Upset stomach

aches and heaviness in my legs

feeling breathless when walking 

feeling sorry for myself today

how’s everyone else been 

regards Donna 

Sorry to hear this hope you feel better soon . My first one is Wednesday and I’m very apprehensive x

Good morning, Donna. 

I thought it was just me with the heavy feeling in my legs, but I have had this for the last few days too, and found by wearing my flight socks has helped. 

I have not had a upset stomach, but my bowels do feel a little more active than normal last 4 days, but again its not really affecting me. 

Can't say I am feeling breathless and been out and about, and even started to get back on my treadmill. Granted only doing 45 mins at the moment but feeling okay so far. Its the most I have exercised since my operation.

The fatigue amd tiredness does hit me, and when it does I just rest and go bed a little earlier, so guess its just trying to manage these things the best we can. 

I hope you are feeling a bit better today and I have found some great information on here about immuntherapy on this website. Not sure if you will find it helpful but have included the link here. 

https://www.macmillan.org.uk/cancer-information-and-support/treatments-and-drugs/pembrolizumab  

Hope you have a great Sunday, and you are doing great. 

All the best, 

Jamie 

Good morning, Crisdav. 

Not much longer to wait. I was nervous about my first dose and was not sure to what to expect or feel during it and those hours afterwards. 

The whole process on the day took about 1 hour from start to finish. Obviously, each hospital will be slightly different. 

I arrived, got booked in then called through after 10 minutes. Sat in a chair, had my observations taken and discussed the after care. We spoke about what symptoms I should be concerned about and what side effects are most common. I do have a 24 hour number which I can call anytime day or night. 

The only thing I really had initially was a cold like feeling and cold hands on and off. But not had this for the last 2 weeks. 

Hope you are having a good weekend. 

All the best,

Jamie 

Hi

good luck for Wednesday I’m sure you be fine it’s just the unknown let us know how you get on

best wishes

donna

That’s so good to hear Jamie I hate the thought of being to tired to get on with things I’m really not good at resting always feel the need to be doing something . 
I just keep thinking well I feel fine at the moment and is it worth putting myself through this treatment at the risk of so many side effects when there’s no guarantee it will stop the cancer returning anyway . 
my daughters say it’s my choice but I know they really want me to try anything that may help . My mind is so confused ‍♀️

Thank you x