It's two years since my nephrectomy and they've picked up scattered, 5mm nodules in one of my lungs. The MDT is looking at the scans on Wednesday and I will hear back then what the next step is. I'm naturally a bit shocked but hopeful that treatment will...
Yesterday I was told that I could wait for start of treatment. Today the consultant phoned to say my blood results were concerning him and he advised starting as soon as they can organised it. Feeling as though I'm on a roller coaster and rather alarmed...
I have a date for my kidney removal next week which at first I was very happy about, as my tumour is large and painful. But now I'm starting to get nervous about it, as although it is keyhole, they're removing a kidney! A whole kidney! It just sounds...
Hi everyone, I have kidney cancer that has spread to my liver and am on Cabozantinib with my first scan 3 months later coming up soon. So praying it has stabilised the cancer. In the meantime, I have a few side affects - most are manageable…. Sore feet...
After 8 months of taking Pazopanib had some good news this week, after recent scan my lung tumours have shrunk a small amount. After having my left kidney removed last August and being told then everything okay it was a shock in April after scan to...
Hi All, I joined the onesie club on 14 July. It's not been an easy recovery. Despite laparoscopic surgery I was left with 3 holes and a big slice to get the treacherous righty out. And it got infected, but is fine now. In the last month, I developed a...
My partner is taking Fortivda for his advanced kidney cancer. He was told he would be having immunotherapy earlier but then they changed. I have read that immunotherapy is more successful than chemo for treatment of kidney cancer. I just feel he isn’t...
Last post before I leave. 8 weeks post op & I had my follow up appointment with the consultant. 'completely benign ...... no follow up needed' and that was that! It may take a while to process after 6 months of believing that I had cancer, but...
Hi all, I haven’t posted on here before, but have been advised that this forum may be able to help me. Please bear with me it’s quite a complex situation- My mum had ovarian cancer in 2021 then was later diagnosed with a rare appendix cancer (goblet cell...
Hi there I've been looking to see if I can find some information. I don't even know what I'm looking for to be honest. A loved one has told me that he is to have a kidney removed. There are a few reasons for this. There is a mass but he has been having...
