Hi all, I haven’t posted on here before, but have been advised that this forum may be able to help me. Please bear with me it’s quite a complex situation- My mum had ovarian cancer in 2021 then was later diagnosed with a rare appendix cancer (goblet cell) that same year following pathology results after her debulk surgery for ovarian cancer.
She is currently now stage 4 goblet cell and has never had specific treatment for it.
Currently, after a couple of weeks of in / out at the Christie, another bowel blockage has finally been found. The only way to treat this is by her starting the chemo (capecitebine tablets initially then poss combined with ox p). The issue with this is the C is affecting her kidneys slightly, more so the right side. If her kidney function isn’t quite good enough at present then they want to do a Nephrostomy bag (I think that’s what they call them?) before chemo to get her function up. This we find out today.
Mum initially, and understandably, went into meltdown and said no, take her home. But of course if she does this then life won’t be of much quality and it’d likely be short. She’s 65, has very young grandchildren and a lot to live for. That said she’s battled both ovarian and appendix cancer for the last 20 months. Can I blame her for feeling like throwing the towel in.. no of course. But to me and the rest of the family, she still has options. Ones that MAY work and give her some more time. I would hugely appreciate any advice around the kidney / bag situation as this is massive to her, understandably and how you manage with it, or the situation in general would be very much welcomed. Laura. X
Hi Laura ( and Laura’s mum), and welcome to our small friendly group.
I had my kidney removed and so don’t have any personal experience…….I am not too sure, but think that this is what you may be referring to
https://www.macmillan.org.uk/cancer-information-and-support/treatments-and-drugs/nephrostomy
Please check it out before you show your mum, to make sure it’s the right thing.
Sounds as though you have all been through the mill it’s lovely that your mum has a caring daughter to look out for her.
Cancer can be hard for everyone not just the person who has it ( as you well know)……….so make sure that you look after yourself too.
You will find people friendly and supportive on here, so do keep in touch if you want to chat.
Love to you both, Jules xx
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