Being diagnosed

FormerMember
FormerMember
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I thought I had bowel cancer due to a total change in bowel habits over the last 7 months. Following a CT scan, which could not be definitively ruled out. But I was contacted by the hospital urologist to say that I had a 6.5 cm tumour on and inside my right kidney, malignant cancer and a small node/tumour in my spleen. I had been getting clear blood and kidney tests, plus CA 125 tests ( as I had had ovarian cancer in 2017 and a total hysterectomy). I had/ have no symptoms and it was just like someone had hit me in the face for no reason. I had another CT scan last Saturday to check out my "upper" organs. Then I got a call to go to see the urologist the next day. Having looked at my stomach and seeing that a previos surgeon, many years ago, had left a massive scar when removing my gall bladder the urologist said he could not do a laparoscopy. He said it was urgent but I had to have open surgery, which is not being carried out at the minute due to Covid 19. 

I have spent the last few days trying to make a will and am on automatic pilot, no idea where I am at, still in disbelief. I know I have to have the operation, but I also know, as he told me, that there may well be further treatments depending on the spleen and bowel. How can all the tests I have been having not have picked anything up. Are these new things secondaries to the ovary or is it all just coincidence/bad timing? I have put on a positive face for my 3 " children" who are all married and my partner, but inside I feel lost and fragile.

Sorry just wrote as it happened and how I am feeling today.

  • FormerMember
    FormerMember

    S8S, just sending you a message of love and encouragement and to let you know I have started a wee YouTube blog of my cancer journey if you want the link let me know. 

    Blessings to you 

  • You have to believe they will look after you and do their best for you. I know where your coming from about past ops and scans I wonder myself if they tell you everything. A lot seems to be watch and see. I’ve thought about making a will and I’ve just been told got cancer. Sorting out all my cupboards throwing things out. Things I thought I might need when I retire. Throwing clothes out etc. Talked to my sister she said she did same when she got breast cancer and that was 7 years ago. It’s hard to think about the future but we must be more positive and live life as normal as possible.

  • FormerMember
    FormerMember in reply to Onlymee

    Onlymee I have started a wee YouTube blog of my cancer journey,if you want the link let me know and I will send you it.

  • FormerMember
    FormerMember in reply to Onlymee

    Thanks for the reply. Yes, me too. I have lost a stone and a half in the last few weeks so am throwing things out. I keep telling myself de-cluttering is good. I still have not finished the will but know I must keep at it. I am still having the bowel problems and am not certain it won't rear its' head again. I spoke to my husband yesterday who has admitted he does not believe I have cancer again. He seemed to accept it better the first time. I am ok when he is around but when out for a walk with the dog or just at home I can't stop the tears. I feel out of control and then give myself a good 'talking to'. I wonder how it came to this. But it is here so have no choice to jump through the hoops, so to speak. Take care.