Hello everyone
I would be so grateful if anyone could share their experiences of their second week post chemo. I barely slept last week due to bone / vein pain and then some nights I literally feel like I have the flu. It's day 11 now and I've spent the whole day completely floored like I've been hit by a bus. Yesterday felt like turning a corner, but all of a sudden now this. Supposed to be teaching tomorrow morning (only 1 class every two weeks) but have no idea where my strength has gone. I managed to teach after the first treatment in the 2nd week of recovery but right now that's not looking likely. Is this normal 2 weeks in? 4 more treatments left but have little faith my body is strong enough sorry to be a misery.
And sunshine - instant nausea right?
Hope you're all having a better day x x
Think you should phone your specialist nurse about the nausea, that isn’t right.
if you’ve bone pain, especially in long bones, ask if taking Claritin would help (it’s often prescribed in the USA) as bone pain suggests your Bone marrow is working to produce more cells to replenish those that got damaged/bumped off by the chemo (normal!)
vein pain again should be discussed with your specialist nurse. Hope things ease off for you....
hugs xxx
Moomy
Hey Moomy, bless your heart for all your responses. It must be so tough for you and your daughter. Caring for your own child (regardless of her age), and having to deal with your own treatment. You must be one resilient lady. I take my hat off to you.
My brother has been sending funny clips from the comedian Jim Gaffigan. He's got shorter ones on Youtube and longer, hour long versions on Netflix. I don't know if comedy is your thing but it does help.
Bloods and review tomorrow so have plenty of questions. Finding cocodamol definitely helps with the flu type symptoms but only taking it when I really need to.
Will absolutely ask about the Claritin. Thank you for the suggestion have a lovely day.
x x x
Hi, bless you, we are doing ok thank you!
hope your appointment goes well, and bloods are all ok. If you’re getting vein pain it might be worth asking them about a PICC Line as then you won’t need cannulating each time? Your haematologist might not be that aware about Claritin and bone pain, they use it a lot more in the USA particularly for the white cell boost jabs that are sometimes needed.
Daughter was well through all her illness before I got diagnosed, paid me back by insisting on staying for a week to look after me as hubs is disabled! Bless the lass! Yes she still has an almost non existent immune system but is getting well used to doing her weekly jabs of immunoglobulin!
Hugs xxx
Moomy
Hey Moomy
I'm so glad to hear that your daughter looked after you for a week, and that she does her weekly jabs. I'm sure living with your disabled husband with all of this to bear can not be easy at all.
After going in for bloods on Wednesday I ended up staying in hospital for three nights as I had neutropenic sepsis. I've been told that if I have any more shivering to go straight to A&E. Now sporting a buzzcut 2 as hair is falling out fast. Bought a more accurate thermometer. Chemo put off until next Friday. Just hoping for no dramas next time!
Hope you're staying safe in these covid times and getting some TLC from your family Moomy x x x
Oh noooo! Poor you! They might indeed think about the G-CSF jabs for you to boost your white cell count? If so then definitely start taking Claritin the day before you begin them! That’s when they really come into their own.
yes, taking temp regularly and acting on it (phoning one of its raised, they will tell you what) even if extra low.....
we are all doing ok (she says, fingers firmly crossed) bug are being very very careful!
Hugs xxx
Moomy
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