Relapse of Hodgkin’s -complicated by autoimmune disease.

Hi ,

you must feel gutted to have relapsed so soon. I assume you had ABVD as your treatment? What are you’re team thinking about next? As there are now a number of different treatments available, far more than when our daughter was treated. 
where are you being treated? Might it be helpful to ask your team to talk to some of the renowned specialists in the field, like Professor John Radford at the Christie hospital in Manchester, or Dr Chris Macnamara at UCLH in London? 
hope you get some answers and a plan soon

hugs xxx

Hi

Thankyou for your support.  I had AVD but without the B as I have scarred lungs from my auto immune  disease.  I have confidence in my consultant.  We have not yet discussed further treatment as the lump in my neck is not currently big enough to biopsy.  It just showed up on PET scan but it’s good to know there are treatments out there.

jollyjack

Hi again, 

if it’s just one neck lump then they might consider radiotherapy? They can really do targeted radiotherapy now.

hugs xxx