Hi everyone,
It's been a little while since I have been on here thought I would share some good news after my relapse earlier this year. I found out last week that I am now officially in remission!
After 6 cycles of ABVD, my HL came back during treatment after a negative interim PET (very unusual apparently). I knew something wasn't quite right as had been getting pain near my sternum and it felt a bit itchy and sensitive there, just odd. Sure enough the end of treatment PET showed uptake in that area. I was convinced I would be going straight to a stem cell transplant, but instead they decided to do salvage radiotherapy to that one lymph node site and 2 cycles of GEM-P chemotherapy to kill off any stray cells.
It felt like the worst feeling in the world at the time as I could not face more treatment and it's the fear of the unknown, but it has finally paid off. I wanted to share this news to show that a relapse doesn't always mean a transplant - it depends on your circumstances - and that even in the very unlikely event it does come back, it can be dealt with!
Helen x
Helen.......just love love love this and yes it will be a great encouragement for those who may find themselves in the same position.
I am doing my happy dance for you xx
PS.......take a look at THIS hilarious take on us Scots and dancing...... it will brighten up any dull day xx
....... the thing is, it’s so true.
Watched a few Americans get caught up in the middle of this - one of the funniest things I have ever seen
