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Hello fellow experiencers and supporters. I’ve had the blood test, the ultrasound biopsy and MRI. Was due to see the consultant in two weeks time but they've brought it forward to Thursday this week. I know I’m in for a very rough ride but this freeks...
I was diagnosed with tonsil cancer last week and was told T3N1M0. Planning in process for CRT. I had a routine appointment today with the HNC specialist nurse and dietitian. During the meeting the ENT consultant came in and told me that the scans had...
Just had dental assessment today prior to starting radiotherapy and chemo for tonsil cancer. Teeth all ok so no extractions needed. Trismus appears to be a very common and scary side effect from the radiotherapy. Anyone had a positive outcome with the...
Can anyone describe experience post surgery ? I’m two weeks post op but still have large neck swelling , complete numbness of ears, neck, back of head and upper chest . Also difficulty with some speech sounds and unable to smile with lower lip or move...
Has anyone been advised about smear tests after an HPV 16+ throat cancer. The NHS doesn’t do them after 70. Is it necessary or advisable to ask for them.
So another hurdle cleared in this journey. Pleased to say my PET scan showed a complete metabolic response and I now move to 6 weekly check ups. Dry mouth persists and taste improvement slow at 18 weeks post radiotherapy. Just got to keep going.
HI, I have just joined this community because my wife was diagnosed with Tonsil Cancer last week. We are starting that journey through Preps, Treatment and God willing the Recovery period now. This diagnose has made me realise I am definitely going...
“Hello, I’m due to have a right postero-lateral oral tongue excision — about a 2p-sized area, roughly 1 cm deep (shallow partial glossectomy). I haven’t had surgery yet and would really value hearing from others who’ve had lateral oral tongue surgery...
Hi just wee update. I am now on two monthly appointments and thank goodness all going well. I asked my consultant about the Doppler ultrasound and he said he would refer me for it. When I went back last week he said they won't pass it as I don't qualify...
Hi, and Happy New Year to you all in here. (It’s very hard to not make this sound too self-congratulatory, but here goes.) It was 5 years ago yesterday that, aged 63, I finished off a full English breakfast of tonsillectomy and neck dissection, quickly...
