Hello. Im due surgery in a week and scared!

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“Hello, I’m due to have a right postero-lateral oral tongue excision — about a 2p-sized area, roughly 1 cm deep (shallow partial glossectomy).
I haven’t had surgery yet and would really value hearing from others who’ve had lateral oral tongue surgery, particularly about what to expect with speech, eating, pain, and recovery in the early weeks.

Im so scared of what to expect! Anyone know this type.

X

  • Hi Sue? Are you having a reconstruction? 
    My old neighbour had a similar op without a flap and healed perfectly ok. I think she was just in soft food and pain killers for a little while. 
    I can hear her talk with a slight lisp but that’s all

    Have a look at 

    https://www.youngtonguesglobal.com/

    While there are a few glossectomy patients here Young Tongues is much more active.
    Good luck with your surgery 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • Hi Sue. I had a partial Glossectomy 5 years ago. It's normal to be apprehensive about upcoming surgery. Everyone is different but expect to have some discomfort and a numbness for a few weeks after. Have you had a feeding tube in yet? 

    Mine was more extensive surgery but my advice is speaking to your team. Get decent pain meds prescribed also. This is a routine surgery for these guys and you are in good hands I assure you. It's difficult to predict after effects as my neck dissection and partial Glossectomy took 13 hours and left me in alot of discomfort. You should fare better but please try and relax, the surgeons know what they are doing,they do it everyday. Take care, hope I've helped a bit at least. Keep talking, knowledge is power. Wayne 

  • Thankyou so much. No im not having reconstruction. Just stitches. And apparently op is nasal intubation.. im so scared

  • Thanks so much. Im not having neck dissection with first surgery until results. Biopsy was mid to poor grade but mri showed no lymph. They said feeding tube on waking but maybe removed and home next day!! Very poor service

  • nasal intubation

    I had that when I had my panendoscopy. You won’t feel that. They give you a squirt of local up your nose then your induction anaesthetic and you’re out cold. 
    Just make sure they send you home with lots of pain killer and if you’re on cocodomol you’ll need laxatives as well. 
    Try to chill. Your anaesthetist will put you at ease and you’ll be back in recovery in a trice 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • feeding tube on waking

    And I had that too. You won’t feel it and it’s easy to take out when you go home. 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

    Community Champion badge
  • Thankyou SO much Bee for being so kind. I hope you are ok now? Really appreciate your support x

  • Hi Sue, have you had your surgery now? How did it go, if so?

    I've had two partial glossectomies and found the process to be much more doable and less traumatic than I had feared. I have been especially impressed by how cleverly my surgeon applied the stitches to keep the tongue looking... actually pretty normal.

    After having radiotherapy as well, my speech has changed a little, with a bit of lisping that Beesuit describes, but I am adjusting.

    Try not to be too scared if you're about to have surgery. They'll look after you. 

  • Hi Scared

    Thankyou for kind msg. Yes I had surgery and as yourself it was not as bad as I had envisaged..i can even talk beer than thought! Pathology is 3 week wait so hoping not to have radiotherapy but biopsy mid to poor differentiation so may not escape, as im told the radio is worse than the surgery.

    Thankyou for kindvreassurance. Sue

  • I'm on my 4th day of 30 radiotherapy sessions later today and so far it's all ok.

    I've been prepared that week 3 to 4 is when the side effects CAN kick in but everyone is different.

    Take it one day at a time.and try to stay positive Thumbsup

    Sending you my positive vibes Thumbsup