So scared

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I was diagnosed with tonsil cancer last week and was told T3N1M0.  Planning in process for CRT.  I had a routine appointment today with the HNC specialist nurse and dietitian. During the meeting the ENT consultant came in and told me that the scans had been looked at more closely and because there is very slight invasive spread to the tongue my stage has been amended to T4.

However, incidental findings from CT and MRI have shown lesions, one at the base of the skull and several upper right side of abdomen. The radiologist didn’t think they were connected to the tonsil cancer but isn’t sure what they are. I need to have a triple scan and advice sought from specialist at Salford about base of skull lesion.  I was diagnosed with a fatty liver in January which was found on USS whilst checking kidneys. 

They are still carrying on with the plan for CRT and told this is the main priority .  The ENT surgeon did say she wasn’t worried, they just need to know what they are,  but I’m not sure if she just said that to try and stop me having an absolute meltdown! I’m absolutely terrified and totally shell shocked with this news. I can’t believe this is happening Cry

  • The ENT surgeon would be upfront with the information that they now have, it's not in their best interests to unsettle you.... try to keep occupied, not easy but worrying about things will only make your situation even more difficult...

    Michael