Tongue cancer

Hi Jackie

Jg123 said:

Wondered if anyone else had this experience.

Yep..... My GP tried twice to refer me and both times were rejected saying hospital doesn't screen for carotid disease, stating doppler is used reactively after stroke or TIA.  

Stenosis is a late  risk and If you can afford it I would pay for a private scan at five years post. I have developed pulsatile tinnitus so I'm paying for a CT angiograph  which will spot any carotid pathology at the same time.

Jg123 said:

I asked him if I was at risk and he said not really

If you have had RT to the neck you are at risk but it's a late effects thing so don't worry just yet. I would definitely keep blood pressure low and take statins, though

Hi Dani thank you for that advice. Yes I agree I will pay for private scan at 5 years. I did have RT to neck. I am already on statins because it runs in the family. So thank you. You think five years time enough?xx

Jg123 said:

. You think five years time enough?xx

I'm sure that's what I've read. I am an ex smoker, though given up many years ago. That adds to my risk. There is no harm getting a base scan now but you would have to pay for it, sadly

Thank you xx

Hi Jackie

Like Dani I have developed pulsatile tinnitus almost certainly from the RT effects.  I spoke to my consultant as it was getting more noticeable and they arranged for a CT head and fortunately found nothing concerning.  That was done when I was about 18 months post treatment.  Now just over 2 years post.

I think I am really lucky with my care as both my GP and hospital react really well to any concerns I may have.  I know not all are so lucky.

Thank you Peter, I'm doing well just all the side effects that we deal with . X

PFJTHS said:

Like Dani I have developed pulsatile tinnitus almost certainly from the RT effects

I’m beginning to be unsure about this. My scan is in Friday. As I’m paying for it I should have results pretty quickly. If there is no explanation I shall explore whether the cause may lie in the neck stiffness and tension I carry around with me. I’m in touch with fellow sufferers who have had relief from professional massage. Watch this space.